Natalie’s Bowel Cancer Story

Catheter Week

最初发布于:2022年2月24日。Last modified on April 4th, 2022

39岁的娜塔莉来自伦敦,36岁时被诊断为肠癌第四期。癌症已经扩散,即使经过高强度的化疗和放疗,她最终还是接受了盆腔切除手术,这导致她的膀胱和输尿管受损,需要使用导管。

Catheter Week
Natalie Woodward was diagnosed with bowel cancer
Catheter Week

Natalie, thanks for talking to the Bladder and Bowel Community…

Can you tell us how you came about your pelvic exenteration surgery?

I was diagnosed with stage 4 cancer in my bowel, which was initially inoperable as it was growing into my spinal nerves. I went through an aggressive course or chemo and radiation which worked well, but my cancer started growing back really quickly after the first lot of treatment so I had to have a pelvic exenteration to remove everything the tumours were touching. They removed my ovaries, fallopian tubes, womb, cervix, vagina, rectum, anus, left piriformis, scraped out my pelvic sidewall bone, removed a section of my spine including spinal nerves and the cancer had also spread to my left ureter so they had to cut the cancer out and then stretch the remaining ureter and reimplant it into my bladder.

你需要在手术中直接使用导管吗?还是在手术后的一段时间内发生的?

Because my bladder was cut and made smaller and was obviously manhandled due to the surgery, it suffered nerve damage and I had a permanent catheter for 2 months, part of which I had a ‘flip flow’ tap on it to try to get my bladder to learn how to fill and release again.

Following that I had a trial without a catheter but my bladder wouldn’t empty and I ended up with hydronephrosis (swelling of the kidneys) and had to have a permanent catheter back in. I then had to learn how to do intermittent self catheterisation so that I could properly drain the bladder and avoid further kidney issues. I have been doing intermittent self catheterisation ever since

我们记得读到过你在医院里忍受肾脏和膀胱的痛苦,随着时间的推移,你现在使用导尿管了吗?

The kidney issues have definitely settled down with the use of intermittent self catheterisation, I still have bladder issues due to the damage from surgery and the fact I had my pelvic floor cut in half but I’m managing it.

How does using catheters affect your day-to-day life?

It just means I have to be prepared when I leave the house. I get a lot more water infections and have had some quite bad UTIs, but on the whole I’m finding the catheters really manageable.

What type of catheters have you used to support your condition?

I use Coloplast speedicath

How did using catheters change things for you?

It meant I could get rid of my permanent catheter and spend less time in hospital which is always good!

I was horrified at having to use catheters at first as I have had some awful experiences of being catheterised in hospital but actually it was nowhere as bad as I thought! Even though my anatomy is slightly different down there following surgery I find it really manageable.

How do you feel about having to use catheters?

I was horrified at first as I have had some awful experiences of being catheterised in hospital but actually it was nowhere as bad as I thought! Even though my anatomy is slightly different down there following surgery I find it really manageable.

你认为对那些使用导管的人来说有足够的帮助吗?

I definitely don’t think there’s as much info as there is for stomas and I haven’t seen many people talk about it!

你的情况是否得到任何支持/帮助?

I have an amazing Macmillan nurse and also stoma nurses at my hospital, St Marks.

Are you able to work with your condition?

I am not able to do the work I did before cancer sadly, but I have some part time work from home that I am doing which is good as I can manage my issues around it.

Further Information

Navigating life with a catheter can feel overwhelming at times, which is why the Bladder and Bowel Community have launched a Catheter Care guide to help answer those tricky questions you may have. Follow the conversation on Social Media with #CatheterWeek and get involved with any comments you may have.

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